My Own Blood: A Memoir by Ashley Bristowe
Requirements: .ePUB reader, 4 MB
Overview: Mothering under normal circumstances takes all you have to give. But what happens when your child is disabled, and sacrificing all you’ve got and more is the only hope for a decent future? Full of rage and resilience, duty and love, Ashley Bristowe delivers a mother’s voice like no other we’ve heard.
When their second child, Alexander, is diagnosed with a rare genetic disorder, doctors tell Ashley Bristowe and her husband that the boy won’t walk, or even talk–that he is profoundly disabled. Stunned and reeling, Ashley researches a disorder so new it’s just been named–Kleefstra Syndrome–and she finds little hope and a maze of obstacles. Then she comes across the US-based “Institutes,” which have been working to improve the lives of brain-injured children for decades. Recruiting volunteers, organizing therapy, juggling a million tests and appointments, even fundraising as the family falls deep into debt, Ashley devotes years of 24/7 effort to running an impossibly rigorous diet and therapy programme for their son with the hope of saving his life, and her own. The ending is happy: he will never be a “normal” boy, but Alexander talks, he walks, he swims, he plays the piano (badly) and he goes to school.
Genre: Non-Fiction > Biographies & Memoirs
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