More Than You Can Handle: A Rare Disease, A Family in Crisis, and the Cutting-Edge Medicine That Cured the Incurable by Miguel Sancho
Requirements: .ePUB reader, 1.3 MB
Overview: The personally harrowing and medically enthralling story of a family’s struggle to save a child from a deadly immune deficiency.
A journey through the deepest valleys and highest peaks of parenting. When a 2-month old baby falls ill, his apparently ordinary symptoms turn out to signal a rare and lethal immune deficiency. For parents Miguel Sancho and Felicia Morton, the discovery that their son Sebastian has Chronic Granulomatous Disease (CGD) upends their lives and leaves the family with few options, all of them terrifying. With Sebastian at constant risk of deadly infection, they spend the next six years in some degree of self-quarantine, with all its attendant anxieties and stressors, as they struggle to keep their son alive, their marriage intact, and themselves sane.
The quest for a cure leads them into the alternate universe of the rare disease community, and to the cutting edge of modern medicine; as their personal crises send them fumbling through various modalities of self-help, including faith, therapy, and meditation. With brutal honesty, Sancho describes how his struggles derail his career, put his marriage on life support, get his family evicted from a Ronald McDonald House, and ruin a Make-a-Wish trip.
Genre: Non-Fiction > Biographies & Memoirs
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